Imagine just how your life would be if you were allergic to life – you couldn’t go outside because the sun could burn your skin; you couldn’t even enjoy the breeze because it might contain pollen or dust; you couldn’t lie down on the grass because the grass can send you to the hospital; you couldn’t eat anything (even the healthiest stuff) because they can kill you. What a horrible way to live, right?
Well, while we are quite right about that being a horrible way to live, this is exactly what Brynn Duncan has to go through every single day of her life. It wasn’t always this way for Brynn who was an active girl with a black belt in Taekwondo before she was diagnosed with mast cell activation syndrome.
Today, she is virtually a prisoner in her own room; though there were no bars to stop her from going out – but doing so could be deadly so she remains in her tower, hanging out with friends using the internet.
She’s probably never going to be able to have fun outside her own home but this cheerful girl surprises us by staying positive, saying she must have been destined to have this sickness so she can share her experiences to the world and educate everyone about this rare medical condition that made her allergic to life.
Mast Cell Activation Syndrome
Also known as mast cell activation disorder (MCAD), mast cell activation symptom (MCAS) is an immunological condition wherein “mast cells create inappropriately and excessively release chemical mediators (leukotrienes and histamines), resulting in a range of chronic symptoms.”
Patients with MCAS do not have abnormally increased number of mast cells; however, their mast cells appear to be malfunctioning; thus, chemical mediators are being released even if the patient was not exposed to “real” triggers.
Symptoms could vary across patients and might even change in the same patient in that one object (such as a food item) could be alright for consumption for a particular day but could become deadly if eaten the following day. Common symptoms include itchiness, easy bruising, diarrhea, dizziness, wheezing/coughing, constant fatigue, and even short term memory dysfunction.
Currently, there is no cure for MCAS but prognosis appears to be high as long as the patient avoids all triggers – which could mean avoiding just about everything!